Barth Syndrome Trust

Romsey Area Information Network

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Services:

Carers Organisations and Groups

Area of Operations:

TBD

Address:

Barth Syndrome UK
1 The Vikings

Romsey
Hampshire
SO51 5RG

Telephone:

01794 518 785

Other Information:

Barth Syndrome Trust, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world. As our mission statement says, we are dedicated to saving lives through education, advances in treatment and finding a cure for Barth Syndrome - a sometimes fatal, often times debilitating genetic disease.
Affiliations: Children's Heart Federation, Contact a Family, Genetic Interest Group.
Opening times: Monday - Friday 9.00am - 5.00pm

Search RAIN

Use this form to find an organisation or service. You can narrow your search by selecting the options provided. To clear the form and start a different search, click the Reset button.

Search RAIN

Use this form to find an organisation or service. You can narrow your search by selecting the options provided. To clear the form and start a different search, click the Reset button.