Barth Syndrome Trust

Romsey Area Information Network

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	Services:
        Carers Organisations and Groups

	Area of Operations:
    TBD

	Address:
	Barth Syndrome UK

1 The Vikings

	Romsey

			Hampshire

		SO51 5RG

Telephone:

01794 518 785

Other Information:

Barth Syndrome Trust, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world. As our mission statement says, we are dedicated to saving lives through education, advances in treatment and finding a cure for Barth Syndrome - a sometimes fatal, often times debilitating genetic disease.
Affiliations: Children's Heart Federation, Contact a Family, Genetic Interest Group.
Opening times: Monday - Friday 9.00am - 5.00pm

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Barth Syndrome Trust

Romsey Area Information Network

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