Barth Syndrome Trust, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world. As our mission statement says, we are dedicated to saving lives through education, advances in treatment and finding a cure for Barth Syndrome - a sometimes fatal, often times debilitating genetic disease.
Affiliations: Children's Heart Federation, Contact a Family, Genetic Interest Group.
Opening times: Monday - Friday 9.00am - 5.00pm
